These are used to record whether or not a patient wishes to participate in one of the UKRDC’s member projects.
In the case of the UKRR and other projects where the right to hold the data is provided by law rather than individual consent, the records are used to record where a patient has asked that their data not be used by that project.
In the case of projects such as RADAR the Program Membership record should only be closed if the patient actively wishes to withdraw. It should not be end dated when they leave the unit or die.
If a patient decides to leave a project and then re-joins a new Program Membership record should be created (with a different ExternalID) rather than re-opening the original one.